Son is recovering but there are lots of ups and downs, especially with regard to the functioning of the stoma. It is obviously a case of getting used to it and realising that it is still early days and the intestines have suffered a great deal of trauma during the surgery, so they will not be working as easily, or reliably, whilst still swollen as they hopefully will in a few weeks. There was excellent news this morning though, the consultant phoned with the biopsy results and the inflammatory process was definitely ulcerative colitis, not crohns. That is excellent as it means that once son has recovered from this surgery and, fingers crossed, the ‘take down’ surgery he will be almost back to how he was 2 years ago and before his ulcerative colitis started.
Son’s moods are hugely variable, rarely relaxed, often quite short-tempered and frequently anticipating some complication. Every twinge is a possible sepsis, stoma not functioning for an hour, it’s obstructing, he is constantly undertaking a search for symptoms which may be indicating a complication developing. I suppose that he has experienced such a short, but intense relationship with ulcerative colitis, with suggestions that this drug may work, that diet will reduce the symptoms, but all ultimately failing dramatically, that he cannot believe that the operation will be a success. He has lost even more weight since the surgery, he refuses to weigh himself or have photos taken. He caught sight of himself in a mirror the other day, and was horrified by how emaciated he looks and so says that he doesn’t want any reminders of how terrible he looks. I think that it may be quite positive, especially if he gets down about his ileostomy, as he will be able to look back on the photographic evidence of how ill he was, and accept that his stoma has, quite literally, saved his life.
The stoma nurse visited today, and that was great, as she answered questions and reassured son, DIL and clucking Mother. She was also able to discuss the practicalities of ordering supplies, prescription charges and diet. Diet, what diet? Being a greedy little being I am oh so slightly jealous, no one has ever told me to eat high carb, low fibre food. A professional has never said to me ‘ I want you to eat jam doughnuts, chocolate, full-fat milk shakes and chips’, there again I have never been so thin that I find it painful to sit on a padded dining-chair.
Still no new grandchild. Stretch and sweep booked for Sunday