I’m keeping this record now in case there are any other relatives (over-protective Mothers) reading this after finding out that someone they are close to has ulcerative colitis and may be about to undergo surgery to remove the large intestine. My plan is to have a separate page.
Yesterday son was looking really healthy and feeling positive. He had started eating a light diet and was experiencing some discomfort from his stoma and his remaining gut but he put this down to trapped wind. I was working today and didn’t get the chance to phone him but knew I would be visiting him this evening so wasn’t stressed. When I got home Hubby said that he had tried to phone but had no answer, we surmised that son was too busy mobilising to answer his phone. When youngest daughter spoke to us she told us that she had spoken to DIL who was with son, a poorly son.
When we got to the hospital son was lying in his bed looking waxy and gaunt, in the hour and a half we were there he hardly spoke. Apparently, this came from the man in the bed opposite, soon after we left the night before son’s pain increased considerably, the nurses were called and eventually gave him peppermint water to drink and when this didn’t work they tried paracetamol. At 3am, when the other patients all rang their call bells and told the nurses they would all be putting in formal complaints, a doctor was summoned who didn’t examine son but wrote him up for oral morphine. No one examined son until he started vomiting, this was after lunch, and then they discovered that the ileostomy wasn’t working, his intestine was blocked. They have now sorted it out, apparently he still has pain but nothing like it had been for the previous 14 hours. Understandably son is now tired, depressed, has no faith in the people ‘caring’ for him and does not want to try eating again in case it causes him problems. I know that what happened last night is a relatively common complication but that makes the lack of appropriate action from the staff even worse, it could all have been solved far sooner. Thank heavens for the other patients interceding on son’s behalf.